RareCare® Patient Assistance Programs
We provide patient assistance programs to help individuals living with rare diseases:
- Obtain medication
- Receive financial help with insurance premiums and co-pays
- Get diagnostic testing assistance
- Receive travel assistance for clinical trials or consultation with disease specialists
- Provide caregiver respite
- Offer support during emergencies
- Gain knowledge about rare diseases
- Connect with other patient assistance programs
Help with Financial Assistance
Our RareCare® program helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. The program also provides financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Help with Caregiver Aid
Caring for a loved one demands significant amounts of time, attention, patience and dedication. Our Respite Program provides financial assistance to enable caregivers a break to attend a conference, event or simply have an afternoon or evening away from caregiving. We grant up to $250 for those who qualify.
Help with Educational Support
The Rare Disease Educational Support Program reimburses registration costs for rare disease-specific educational offerings such as workshops, nutrition classes, and conferences, as well as limited financial assistance for travel and lodging costs. For more information and to apply, please contact [email protected] or 860.556.2208.
NORD’s Impact
For over 40 years, NORD has driven progress in rare disease patient care, policy and research.
$174 million in financial assistance for patients and caregivers since 2018
The NORD Helpline responded to nearly 700,000 requests for support
Nearly 2 million travel miles reimbursed for patients seeking treatment, clinical trial participation or specialist consultations
Connecting $2.5 million in non-medical emergency relief provided to patients, including natural disaster and COVID-19 response funds since 2015