Patient Assistance Programs

We provide patient assistance programs to help individuals living with rare diseases:

  • Obtain medication
  • Receive financial help with insurance premiums and co-pays
  • Get diagnostic testing assistance
  • Receive travel assistance for clinical trials or consultation with disease specialists
  • Provide caregiver respite
  • Offer support during emergencies
  • Gain knowledge about rare diseases
  • Connect with other patient assistance programs

Help with Financial Assistance

Our RareCare program helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. The program also provides financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

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Help with Caregiver Aid

Caring for a loved one demands significant amounts of time, attention, patience and dedication. Our Respite Program provides financial assistance to enable caregivers a break to attend a conference, event or simply have an afternoon or evening away from caregiving. We grant up to $250 bi-annually for those who qualify.

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Help with Emergency Relief

We have teamed up with the MedicAlert Foundation to provide protection to rare disease patients in emergency situations. The program provides eligible individuals with a MedicAlert product and three years of membership with a new membership using the tracking code: NORD. MedicAlert will donate 20% of the membership fees to NORD to further our mission of providing care and resources for those living with rare disorders.

For more information and to apply, please contact: or 203.616.4325.

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Help with Educational Support

The Rare Disease Educational Support Program reimburses registration costs for rare disease-specific educational offerings such as workshops, nutrition classes, and conferences, as well as limited financial assistance for travel and lodging costs.

For more information and to apply, please contact or 860.556.2208.

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