Patient Assistance Programs

We provide patient assistance programs to help individuals living with rare diseases:

  • Obtain medication
  • Receive financial help with insurance premiums and co-pays
  • Get diagnostic testing assistance
  • Receive travel assistance for clinical trials or consultation with disease specialists
  • Provide caregiver respite
  • Offer support during emergencies
  • Gain knowledge about rare diseases
  • Connect with other patient assistance programs

Help with Financial Assistance

Our RareCare program helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. The program also provides financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

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Help with Caregiver Aid

Caring for a loved one demands significant amounts of time, attention, patience and dedication. Our Respite Program provides financial assistance to enable caregivers a break to attend a conference, event or simply have an afternoon or evening away from caregiving. We grant up to $250 bi-annually for those who qualify.

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Help with Emergency Relief

We have teamed up with the MedicAlert Foundation to provide protection to rare disease patients in emergency situations. The program provides eligible individuals with a MedicAlert product and three years of membership with a new membership using the tracking code: NORD. MedicAlert will donate 20% of the membership fees to NORD to further our mission of providing care and resources for those living with rare disorders.

For more information and to apply, please contact: medicalert@rarediseases.org or 203.616.4325.

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Help with Educational Support

The Rare Disease Educational Support Program reimburses registration costs for rare disease-specific educational offerings such as workshops, nutrition classes, and conferences, as well as limited financial assistance for travel and lodging costs.

For more information and to apply, please contact rdeducate@rarediseases.org or 860.556.2208.

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