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FD/MAS Global Awareness Art Competition

FD/MAS Alliance invites all those in the FD/MAS community (those diagnosed with fibrous dysplasia, McCune-Albright Syndrome and family members of the diagnosed, as well as friends, clinicians, and researchers) to submit visual and literary art to the first-ever FD/MAS Global Awareness Art Competition. The contest is open to artists of all ages and the theme …

Why Does Rare Disease Awareness Matters to You?

BioNews will be using social media and community content to help raise awareness and answer the question, “Why does rare disease awareness matter to you?” We will use the hashtag #WhyRare throughout our social media platforms, particularly our corporate platforms of LinkedIn, Facebook, and Instagram. This year, it is time to get all of us …

Chondrosarcoma Awareness Day

This is Chondrosarcoma Foundation's international effort to educate the public about this rare bone cancer and to build a coalition to support more research and clinical trials. The more attention we create, the more support we generate. Join in by wearing a yellow ribbon or a yellow wrist band and post pictures wearing yellow on …

Mitochondrial ARS (Mt-aaRS) Genes Scientific Symposium 2023

The mitochondrial ARS genes are considered ultra-rare and most families are sent home with little to no direction on what the future holds for their loved ones. By connecting families, we strive to create a communication network that will enable families to be better equipped to advocate for their loved ones

9th World Congress on Cardiology and Cardiovascular Therapeutics

We welcome you for this 9th World Congress on Cardiology and Cardiovascular Therapeutics time in Rome, Italy during February 20-21, 2023. The main thought of our conference is “Guidance and Management for the Cardio Vascular Disease during the COVID-19 Pandemic". CARDIOLOGY2023 Conferences will be an examination of the newest successions in cardiac disorders, recovery and …

Free Webinar: PFIC: Genetic Contributions to Its Phenotype and Treatment Considerations

What: Free Webinar: PFIC: Genetic Contributions to Its Phenotype and Treatment Considerations When: Fri, Feb 24, 2023 2:00 PM - 3:00 PM EST Jim Squires, MD, from the Division of Pediatric Gastroenterology, Hepatology, and Nutrition at UPMC Children's Hospital of Pittsburgh and part of the Center for Rare Disease Therapy, will discuss progressive familial intrahepatic …

UTSW Rare Disease Day at the Dallas Zoo

UTSW and the Dallas Zoo are hosting a Rare Disease Day event. Zoo admission is $8. There will be an information/contact booth, picture booth, and group picture for all UTSW personnel present. Wear stripes and come show how UTSW supports patients with Rare Disease!

Tennessee Rare Disease Day

Knoxville’s Lawson McGhee Library 500 W Church Ave, Knoxville, TX

NORD Tennessee Rare Action Network Rare Disease Day One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their loved ones, as well as to raise awareness of issues facing others in the community. …

Free

Arkansas Rare Disease Day

NORD Arkansas Rare Action Network Rare Disease Day Saturday, February 25, 2023 Arkansas College of Osteopathic Medicine Main Building, 7000 Chad Colley Blvd., Fort Smith, AR. 72916 Event is from 11:00 am – 4:00 pm There is no cost to participants to attend this event. One of the greatest challenges individuals living with a rare …

Free

California Rare Disease Day (Virtual)

NORD California Rare Action Network Virtual Rare Disease Day Saturday, February 25, 2023 THIS IS A VIRTUAL EVENT  11:00 am – 12:30 pm PST One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and …

Free
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