Current Job Openings at Member Organizations
NORD’s membership is comprised of a diverse array of patient organizations. Currently we have 340 members who together represent hundreds of diseases. NORD supports these member organizations in a multitude of ways, including listing their job openings on our website. Please see below for current job openings from our member organizations.
Project 8p Foundation – Science Director
Project 8p Foundation is seeking a highly motivated candidate to lead multi-faceted research programs in academia or industry to accelerate moving discoveries out of the lab and into clinical development across multiple therapeutic modalities (drug repurposing, gene therapies, etc). This individual will have the unique opportunity to devise high-level scientific strategies, plan and implement specific projects, and communicate results to all 8p stakeholders, including families.
For more information and to apply, click here.
Immune Deficiency Foundation – Communications & Marketing Manager
The Communications & Marketing Manager is responsible for the management, development, and creation of communication materials related to organizational growth, advertising, promotion, and campaign management. This position will be required to work independently and collaboratively on multiple initiatives. This position is remote with occasional travel for conferences and periodic travel to the IDF offices in Hanover, MD. Apply here: https://primaryimmune.org/careers
United Porphyrias Association – Part Time Administrative Research Coordinator
The United Porphyrias Association is looking for a part time Administrative Research Coordinator. The APEX Administrative Research Coordinator is a vital position within the American Porphyrias Expert Collaborative, responsible for managing research grants with healthcare professionals and supporting the organization with administrative tasks such as basic membership management, invoicing, and secretarial duties. This role is crucial to the facilitation of fundamental, translational, and clinical research in the fields of the Porphyrias and heme biosynthesis, and increasing knowledge of the porphyrias among physicians and scientists. This part-time position can be home-based or performed at UPA’s office in Bethesda, MD. Candidates who reside within a close driving distance to Bethesda are preferred, but for the right person we are open to hiring from anywhere in the United States.
Please submit a cover letter and resume to [email protected]. Applications are reviewed on an ongoing basis.
The National Niemann-Pick Disease Foundation
The National Niemann-Pick Disease Foundation is seeking an experienced and passionate leader to serve as its next Executive Director and guide the community through this new post-approval landscape of commercially available treatments.
Learn more about their career opportunities here!
NTSAD’s Manager of Development is responsible for the fundraising efforts of the organization. This role reports to the Chief Executive Officer, and collaboratively interacts with NTSAD’s major donors, staff, Board of Directors, committee members, and members of the rare disease community. The Manager’s primary responsibility is oversight of all fundraising operations to meet or exceed the organization’s annual revenue budget while adhering to the expense budget. Paramount to this position is striving to identify and secure new revenue sources while expanding existing sources to meet or exceed goals. The Manager of Development works cross-functionally with other staff members to align fundraising efforts with organizational objectives. To articulate the need for organizational support, the Manager of Development stays apprised of all current NTSAD research projects, advocacy initiatives, and family services programs and activities. More information here: https://ntsad.org/wp-content/uploads/2024/10/NTSAD-Manager-Development-job-description.pdf |