Explore More

Sección

Apply for Membership

Thank you for your interest in NORD membership for patient advocacy organizations.  You are one step away from receiving the many benefits and resources NORD provides its members, including support in the areas of drug development, board management, organizational governance, federal policy and regulatory affairs, research, fundraising, capacity building, and more.  NORD’s Membership Team looks forward to supporting you during the application process.

Current NORD members will receive a personalized form to complete for their annual renewal. Therefore, please refrain from filling out the new member application below.

Membership annual dues are based on the organization’s gross annual revenue*
Annual gross revenue less than $25,000: Annual Dues = $50
Annual gross revenue between $25,001-$50,000: Annual Dues = $75
Annual gross revenue between $50,001-$100,000: Annual Dues = $150
Annual gross revenue between $100,001-$250,000: Annual Dues = $200
Annual gross revenue between $250,001-$500,000: Annual Dues = $300
Annual gross revenue between $500,001-$750,000: Annual Dues = $400
Annual gross revenue between $750,001-$1,000,000: Annual Dues = $500
Annual gross revenue between $1,000,001-$2,000,000: Annual Dues = $700
Annual gross revenue greater than $2,000,001: Annual Dues = $900

If your organization is having difficulty meeting the membership criteria please contact our membership team at [email protected] 

*The amount of money your nonprofit has raised without expenses being taken out

National Organization for Rare Disorders Membership Application

| Resume a previously saved form
Resume Later

In order to be able to resume this form later, please enter your email and choose a password.

Password must contain the following:
  • 12 Characters
  • 1 Uppercase letter
  • 1 Lowercase letter
  • 1 Number
  • 1 Special character

Thank you for your interest in NORD membership for patient advocacy organizations. You are one step away from receiving the many benefits and resources NORD provides its members, including support in the areas of drug development, board management, organizational governance, federal policy and regulatory affairs, research, fundraising, capacity building, and more. NORD's Membership Team looks forward to supporting you during the application process.



Please no acronyms or abbreviations

Only include if your organization uses an abbreviation or acronym publicly. Separate multiple with a comma.

Organization Address








To be listed on the NORD website








Separate multiple with a space
Executive Leadership
Please provide the contact information for your executive leader. This may be the CEO, Executive Director, Executive Vice President, or Board Chairman (if you do not have someone on staff).









By selecting yes, you are consenting to receive emails specifically for NORD members. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Active Campaign.
Social Media Contact









By selecting yes, you are consenting to receive emails specifically for NORD members. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Active Campaign.
Medical/Scientific Advisor









By selecting yes, you are consenting to receive emails specifically for NORD members. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Active Campaign.
Primary Contact for Membership

Please specify who you would like to handle questions about your membership application.









By selecting yes, you are consenting to receive emails specifically for NORD members. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Active Campaign.

Additional people
Please list any additional people from your organization you would like to receive NORD's monthly e-news and member communications.






By selecting yes, you are consenting to receive emails specifically for NORD members. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Active Campaign.


Application Questions







Please no acronyms or abbreviations











Please confirm that your organization meets all of NORD’s criteria for membership. 










Application Checklist

Platinum or International Membership
The following documents are required to be submitted alongside your application:
  • Proof of 501(c)(3) tax-exempt status
  • A copy of your organization's by-laws (dated and signed). Bylaws must detail the process for electing board members.

  • The names and addresses of your Board Members (minimum of 5) 
  • The names and addresses of your Medical and/or Scientific Advisors (NORD requests that members have at least 3 advisors)
  • A copy of your operating budget
  • A copy of your Conflict-of-Interest Policy for Board and Staff (which defines COI and provides a policy to manage conflicts)
  • A copy of your Privacy Policy that protects the identity of patients and families
  • A link to your Financial Disclosure; where you link to your Form 990, an annual report, or other appropriate information on financials, income, expenses, programs and beneficiaries
  • Organization's logo
The following are recommended to be submitted alongside your application:
  • A copy of your policy and procedures document for expectations and management of your Medical and/or Scientific Advisors (organizations have two years from approval of their NORD membership to meet this standard)
  • Samples of educational materials and/or annual report
Gold Membership
The following documents are required to be submitted alongside your application:
  • Proof of 501(c)(3) tax-exempt status
  • A copy of your organization's by-laws (dated and signed). Bylaws must detail the process for electing board members.

  • The names and addresses of your Board Members (minimum of 3)
  • A copy of your operating budget
  • A copy of your Conflict-of-Interest Policy for Board and Staff (which defines COI and provides a policy to manage conflicts)
  • A copy of your Privacy Policy that protects the identity of patients and families
  • A link to your Financial Disclosure; where you link to your Form 990, an annual report, or other appropriate information on financials, income, expenses, programs and beneficiaries
  • Organization's logo
The following are recommended to be submitted alongside your application:
  • Samples of educational materials and/or annual report

Please upload these documents below.

Files can be up to 25MB. Accepted file types: 
.doc, .docx, .xls, .xlsx, .ppt, .pptx, pages, .keynote, .key, .numbers, .pdf, .odt, .odt, .ods, .odp, .bmp, .gif, .jpg, .jpeg, .png, .tif, .qtf













Please enter the URL where the public can find your Form 990, annual reports and other information about the organization's financials
Save my progress and resume later | Resume a previously saved form