Membership Webinar Series
NORD hosts monthly webinars for member organizations. We feature topics frequently requested by members, including research collaboration, event planning and best practices for engaging your board. In addition to these regularly scheduled webinars, there are occasionally special webinars added to the schedule with an important topic and/or guest.
Do you have a suggestion of a webinar? Contact NORD’s Membership team.
Past Webinars
| Month | Topic |
|---|---|
| May 2021 | Grow and Diversify Your Board: When, Why and How |
| March 2021 | RareLaunch Resource: Creating Your Medical Advisory Board |
| February 2021 | Diversity, Equity, and Inclusion in Action: Case Studies from NORD’s Rare Cancer Coalition® |
| January 2021 | Hosting Events Amid the Pandemic: Live and Virtual Tips |
| December 2020 | Policy Team Power Hour |
| November 2020 | Election Results and Rare Diseases: What’s on the Horizon |
| September 2020 | Rare Diseases, COVID-19 and Voting Safely this Fall |
| July 2020 | Building a Village: How to Re-Engage Your Board Members, Leaders and Volunteers |
| June 2020 | Crisis Communications: COVID-19 and the Future |
| June 2020 | Fundraising in a Pandemic |
| June 2020 | Considerations when Transitioning to Virtual Events |
| May 2020 | What You Need to Know About the Rare Disease Cures Accelerator-Data and Analytics Platform |
| March 2020 | CDMRP – Department of Defense Funding for Rare Disease |
| March 2020 | Building Your Case: Fundraising for Your Organization |
| November 2019 | Fundraising: Activate your Board |
| September 2019 | Grant Writing for Rare Diseases |
| July 2019 | Increase Donations with Financial Transparency |
| May 2019 | FDA Request to Connect Online Portal |
| March 2019 | Maximizing Your Impact with BoardSource |
| January 2019 | The Cost of Rare Disease Drugs |
| December 2018 | FDA Patient-Focused Drug Development |
| October 2018 | ICD-10 Codes |
| July 2018 | DOD Funding for Your Rare Disease Research |
| May 2018 | Board Management |
| March 2018 | Fundraising |
| January 2018 | Rare Disease Day 2018 |
| November 2017 | Federal Policy on Access and Reimbursement Issues |
| September 2017 | Free Promotion of Your Events and Disease Awareness! |
| July 2017 | Physician Education and Continuing Medical Education (CME) |
| May 2017 | Natural History Studies & Patient Registries |
| March 2017 | ICD-10 Codes and Applications |
Special Ad-Hoc Webinars
| Month | Topic | Presenter |
|---|---|---|
| August 2017 | The National Center for Advancing Translational Sciences: Catalyzing Translational Innovation in Rare Disease Research | Christopher Austin, MD, Director, NCATS, NIH |
| November 2017 | NORD CEO Talk on Analyzing Orphan Drug Use and Cost: Quintiles Study | Peter Saltonstall, President and CEO |
| April 2018 | PCORI Funding | Eleanor Perfetto, PhD, MS, Senior VP of Strategic Initiatives for the NHC |
| July 2017 | Physician Education and Continuing Medical Education (CME) |