Summit Membership Meeting Information

I. Member Benefits

• Contact [email protected] with questions!
• Access the full 2025 Membership Toolkit here
• Access a Summary of new 2025 programming here
• NORD Member Leader Facebook Group
• NORD Membership Portal Log In

II. On Today's Agenda

• Access the Membership Meeting Agenda for today here
• Access the full Summit Meeting Agenda Page here
• Link to Post-event Survey

III. Read More

• Annual Member Meeting 2025 Slide Deck
  (slides and recordings will be available after the meeting)
• Help Create a Better Future: Living Rare Study
  • Read More Living Rare Study
  • Access the Living Rare Study here
• Click here to learn more about the IAMRARE Registry program
• Rare EDU
  • Rare Disease Education: Drug Development Course Enrollment
  • From Records to Research: Making Sense of Health Data for Rare Diseases enrollment
• Click here to learn more about NORD's Patient Assistance Program