Alagille Syndrome Alliance

The Alagille Syndrome Alliance (ALGSA) is a non-profit advocacy and support organization for people affected by Alagille syndrome (ALGS), a rare genetic disorder. Established in 1993, the ALGSA is dedicated to providing support to individuals with this disorder, their family members, and healthcare professionals who care for them. The ALGSA serves as a central location for resources related to the diagnosis and treatment of this rare disorder. ALGSA’s mission is to mobilize resources, facilitate connections, promote unity, and advocate for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.