Alport Syndrome Foundation

Alport Syndrome Foundation (ASF) is a U.S.based non-profit organization led by and dedicated to patients and families affected by our rare, genetic kidney disease. Our mission is to improve the lives of those affected by Alport syndrome through education, empowerment, advocacy and direct investment in research. As of 2024, ASF has more than 8,000 members. Membership, and all of our organization’s programs, educational resources, and events are free of charge. ASF board of directors and staff is advised by a Medical Advisory Group of clinicians with expertise in Alport syndrome, and by a Scientific Advisory Research Network of researchers from across the world.