Angelman Syndrome Support Education and Research Trust

The Angelman Syndrome Support and Research Trust (ASSERT) is an international non-profit organization dedicated to providing information and support to families and caregivers of individuals who have Angelman syndrome. This rare genetic disorder is characterized by congenital mental retardation, the absence of speech, unprovoked laughter, unusual facial features, and muscular abnormalities. Established in 1986 and consisting of 450 members, ASSERT maintains a patient registry and raises funds for education of affected individuals and for ongoing research into the causes, treatment, and prevention of this disorder. ASSERT also offers a variety of educational materials including brochures and a regional newsletter.