Congenital CMV Disease Research Clinic & Registry

The National Congenital CMV Disease Registry, based at Baylor College of Medicine in Houston, Texas, collects information on infants born after 1990 with congenital cytomegalovirus (CMV). The registry is committed to identifying disease patterns over time; describing factors that may increase a mother’s risk of delivering an infant with congenital cytomegalovirus infection; and providing the foundation for future intervention programs and collaborative research. All newborns with a confirmed diagnosis of congenital CMV are eligible to be registered. To do so, have the pediatrician obtain and complete our registry form. In addition to these activities, the Congenital CMV Disease Registry functions as a national clearinghouse for information about congenital CMV. It distributes reprints of medical articles on human cytomegalovirus infection, publishes a newsletter entitled “CMV Updates,” and maintains a CMV Parent-To-Parent Support Network, and publishes an annual newsletter.