EB Medical Research Foundation

The mission of the EB Medical Research Foundation is to relieve the suffering of children with epidermolysis bullosa, a group of diseases characterized by recurrent blister formation as the result of the presence of inherently mechanically fragile skin. The foundation provides funds for medical research and, ultimately, will fund gene therapy for EB children without adequate financial resources. Established in 1991, the foundation also provides advocacy, networking, and educational services.