EURORDIS-Rare Diseases Europe

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organizations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally. By connecting patient, families and patient groups, as well as by bringing together all stakeholders and mobilizing the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services. Our vision is that all persons living with a rare disease can live longer and better lives reaching full potential and well-being, included in a society that leaves no one behind. Our mission is to work across borders and diseases to improve the lives of all persons living with a rare disease.