FOD (Fatty Oxidation Disorders) Family Support Group
About FOD (Fatty Oxidation Disorders) Family Support Group
The FOD (Fatty Oxidation Disorders) Family Support Group was established in 1991 as a way of dealing with the sudden death of the founders’ daughter, Kristen, in 1985 from undiagnosed medium chain acyl CoA dehydrogenase deficiency (MCAD). MCAD is a very rare metabolic disorder that results in the abnormal accumulation of fatty acids in the liver and in the brain. The mission of the FOD Family Support Group is to connect and network with FOD families and professionals across the world and to provide emotional support, share practical information, and inform families of new developments in diagnosis, research and treatment.
Related Rare Diseases:
- Short Chain Acyl CoA Dehydrogenase Deficiency
- Deficiencia de Carnitina-Acilcarnitina Translocasa (CACT)
- Carnitine Palmitoyltransferase 1A Deficiency
- Medium Chain Acyl CoA Dehydrogenase Deficiency
- Glutaric Aciduria Type II
- Systemic Primary Carnitine Deficiency
- Deficiencia de acil-CoA deshidrogenasa de cadena muy larga (LCAD)