Headlines – Craniofacial Support Group

The purpose of Headlines, The Craniofacial Support Group is to support, inform, and advise anyone having, or dealing with, craniosynostosis and associated conditions and syndromes, such as Crouzon syndrome, Saethre-Chotzen syndrome, Pfeiffer syndrome, and Apert’s syndrome. These are conditions and syndromes in which abnormalities of the shape of the skull affect the appearance of the head and/or face. Based in the United Kingdom, Headlines has members in 16 countries. In addition to patient education and networking, it provides other services that include publication of a newsletter and support of health professionals. The organization was established in 1993.