International WAGR Syndrome Association (IWSA)

The International WAGR Syndrome Association is a not-for-profit 501 (c)(3) charitable organization comprised of an international network of families, health care professionals and researchers, and others who care for individuals with WAGR syndrome. The organization originated with a small number of families looking for information and support. These desires and the motivation of this small group were the beginning of the IWSA. Membership is free. Funding for the organization comes from donations and grants, sponsorships, memorial donations, and fundraising activities led by IWSA member families and friends.