Johns Hopkins Hereditary Colorectal Cancer Registry

The Johns Hopkins Hereditary Colorectal Cancer Registry is a research organization that maintains a registry of families affected by different forms of hereditary colorectal cancer including hereditary colon cancer, familial adenomatous polyposis, hereditary nonpolyposis colorectal cancer, juvenile polyposis, and Peutz-Jeghers syndrome. Established in 1973, the registry currently includes hundreds of families affected by these disorders. Interested individuals are offered the opportunity to participate in ongoing research studies. The registry also offers educational materials to people affected by hereditary forms of colon cancer, their families, and physicians.