MSS Research Foundation (Marshall-Smith Syndrome)

The MSS Research Foundation (Marshall-Smith Syndrome) is a non-profit organization whose mission is to finance and stimulate scientific research into the Marshall-Smith Syndrome (MSS). MSS Research Foundation also provides information on this syndrome to a wide audience and supports parents with a child with MSS worldwide. The foundation aims to realize its objectives by applying its efforts worldwide to research into the cause and treatment of MSS, to inform the public about MSS and to issue donations from funds to be acquired by the foundation and other income to University and Research Centre research projects both in and outside the Netherlands. Marshall-Smith Syndrome is characterized by unusually quick physical growth and bone development (maturation), usually starting before birth. Other symptoms can include respiratory difficulties, mental retardation, and certain physical characteristics.