National PKU Alliance

The National PKU Alliance (NPKUA) is a vital voice for the PKU community. They work towards expanding PKU research and accelerating the timeline for a cure by investing in peer-reviewed and targeted research. They provide education and support to people living with PKU. They are the national voice for advocacy at the federal level – at the NIH, FDA and in the halls of Congress. The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country. They are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and industry to make a difference in the lives of people with PKU.