NBIA Disorders Association

The NBIA Disorders Association is a non-profit voluntary organization founded in 1996 and dedicated to families affected by neurodegeneration with brain iron accumulation disorders. NBIA is a group of rare genetic, neurological movement disorders characterized by the progressive degeneration of the nervous system due to iron deposits in the brain. NBIA Disorders Association has four main goals: raising funds to further research on these diseases, providing emotional support to families affected by NBIA, educating the public about NBIA, and monitoring ongoing NBIA research and informing others of research findings and progress. The association publishes a self-titled periodic newsletter, maintains an NBIA Networking Program, and holds family conferences every two years.