Prader-Willi Syndrome Association (USA)

The Prader-Willi Syndrome Association (USA) (PWSA) is a non-profit, voluntary health organization. Founded in 1975, the association provides parents and healthcare professionals with a national and international network of information, support services, and research endeavors to expressly meet the needs of children and adults with Prader-Willi syndrome and their families. The organization comprises parents, professionals and other interested individuals who are taking active roles in improving the lives of people with Prader-Willi syndrome. Goals include normalizing life for people with Prader-Willi syndrome and their families, improving communication and education, and acting as a lifetime advocate for affected individuals. The association also supports research, interdisciplinary communication, and increased professional knowledge of treatments. Educational materials include various brochures and pamphlets.