Rare Diseases Clinical Research Network

Rare Diseases Clinical Research Network (RDCRN) is a non-profit organization that is funded by the National Institutes of Health (NIH) and the Office for Rare Diseases Research (ORDR). Their goal is to contribute to the research and treatment of rare diseases by working together to identify biomarkers for disease risk, disease severity and activity, and clinical outcome, while also encouraging the develpment of new approaches to diagnosis, prevention, and treatment.