The Rory Belle Foundation

The Rory Belle Foundation was created by two mothers of children with NARS1 disorder. Our organization was founded to create one more day of joy for families who fight NARS1 disorder everyday. We are U.S.-based nonprofit supporting the small number of families around the world impacted by NARS1. Our main focus is to support awareness, education, research, and discovery of therapeutics to improve the lives of those living with NARS1.