Thrive with Pyruvate Kinase Deficiency Organization
2024 Member
About Thrive with Pyruvate Kinase Deficiency Organization
Thrive with PK Deficiency Organization is a nonprofit organization whose mission is to connect the pyruvate kinase deficiency community through support, increased social awareness, and advocacy. All of our projects go directly towards helping people and families affected with PK deficiency live a more satisfied life. We have a Facebook support group, tools and resources including a healthy eating guide, guidelines for treating and caring for people with PKD, research on psychosocial impacts of PKD, videos on PKD, a doctor’s list for people searching for expert hematologists, and family conferences allowing people and families the opportunity to meet each other.