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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Ataxia Telangiectasia Children’s Project, Inc (A-T)


Address

5300 W. Hillsboro Blvd. #105
Coconut Creek, FL 33073 USA

Phone

9544816611

Fax

9547251153

800 Number

8005435728

Email Address

info@atcp.org

Description

The A-T Children's Project (Ataxia Telangiectasia Children's Project) (ATCP) is a national, non-profit organization that was established in 1993. Ataxia-telangiectasia is a rare, inherited, progressive disorder characterized by an impaired ability to control voluntary movement (ataxia); rapid, involuntary eye movements (nystagmus); permanent dilation of certain small blood vessels, resulting in small red lesions on the skin and other areas (telangiectasia); and immune deficiency, causing an increased predisposition to certain bacterial infections and malignancies. The purpose of the project is to raise funds to accelerate scientific research aimed at finding a cure or a therapy that would improve the lives of affected children. The specific goals include finding a cure or therapy; increasing awareness of the disorder; and encouraging and funding scientific research directed at specific treatments. The project's activities also include the establishment and maintenance of a cell-bank for unlimited access by research scientists. The A-T Children's Project has established a National AT Clinical Center at Johns Hopkins Hospital, Baltimore, MD.

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