Published March 12, 2026 by NORD
NORWELL, Mass., and MIAMI, Fla. (March 12, 2026) – The National Organization for Rare Disorders (NORD®) and OpenEvidence today announced a new partnership to expand access to trusted, expert-reviewed rare …
Read morePublished February 23, 2026 by NORD
Nationwide initiative encourages health-care providers to boost rare-disease knowledge and early diagnosis BOSTON and NORWELL, Mass., FEB 23, 2026 – In recognition of Rare Disease Day, the National Organization for Rare Disorders (NORD®) …
Read morePublished January 6, 2026 by NORD
Partnership focuses on delivering high-quality medical education to improve rare disease patient outcomes BOSTON AND WASHINGTON, D.C., January 6, 2026 – Medlive and the National Organization for Rare Disorders® are …
Continue reading “NORD Extends Exclusive CME Partnership with Medlive”
Read morePublished November 14, 2025 by NORD
Implementation of two new patient registries on the IAMRARE® platform funded by RDCA-DAP® DANBURY, Conn., Nov. 14, 2025 — The National Organization for Rare Disorders (NORD®), a leading national nonprofit …
Continue reading “NORD Launches New RFP for Patient Registries”
Read morePublished September 30, 2025 by NORD
Today, on Rare Cancer Day, I am proud to recognize the 30 organizations that make up the NORD Rare Cancer Coalition. Rare cancers are part of the family of more …
Continue reading “NORD CEO Statement on Rare Cancer Day”
Read morePublished September 30, 2025 by NORD
By Melinda Bachini of the Cholangiocarcinoma Foundation In April 2012, I walked into the National Cancer Institute (NCI) as Patient 3737. While not being called by my name may be …
Continue reading “From Patient 3737 to Advocate: The Life-Changing Power of Clinical Trials”
Read morePublished August 25, 2025 by NORD
“From Records to Research” empowers patients, caregivers to take control of their health The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more than 30 million Americans …
Continue reading “NORD Unveils New, Free Data Literacy Course”
Read morePublished February 27, 2025 by NORD
Paramount to match funds donated to NORD in support of new film Novocaine QUINCY, Mass., Feb. 27, 2025 — The National Organization for Rare Disorders (NORD®) is teaming up with Paramount Pictures …
Continue reading “NORD, Paramount Pictures Join Forces to Raise Awareness of Rare Disease”
Read morePublished February 21, 2025 by NORD
New Mental Health Video Series Launches February 24 The National Organization for Rare Disorders (NORD®) is excited to announce a new collaboration with Bionews, a digital health solutions company dedicated …
Read morePublished November 18, 2024 by NORD
The National Organization for Rare Disorders (NORD®) announces a request for applications for the implementation of two new patient registries on the IAMRARE® platform. Funding is made available through the …
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