Centers of Excellence
Help finding a medical expert
Centers of Excellence
When you are navigating a rare disease, you need concrete help today and in the future. That’s why we are here.
We help you get a diagnosis by connecting you with access to resources and also providing financial assistance for testing.
You can gain knowledge through our on-line Rare Disease Resource Center, which contains educational videos, free webinars, fact sheets, infographics, and other helpful materials. It is designed to help patients, caregivers, students, professionals, and the public.
Start using NORD’s Resource Library
You can access a database of rare disease experts as well as primary physicians and other healthcare providers.
Search for a rare disease medical expert now
You can receive up-to-date information on clinical trials that NORD shares with patients and medical providers.
You can find financial help with our Patient Assistance Program in areas such as obtaining medications and assisting with insurance premiums and co-pays.
Find a patient assistance program
You can find a patient group to help navigate your specific disease.
Search for a rare disease organization
Every year, during the annual Medicare Open Enrollment period, it is extremely important to look at the Medicare Part D prescription drug plans available to you and check which drugs a plan covers before you sign up.
NORD shared important information regarding Medicare Open Enrollment and the impact of two new benefits of the Inflation Reduction Act (IRA) that affect how much you may pay for your medications if you have Medicare.