RareCare®

NORD’s Patient Assistance Programs

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Acute Lymphocytic Leukemia Premium Copay Assistance
Temporarily Waitlisting
Phone: 844-251-7425 Fax: 203-267-0847
Related Rare Diseases: Acute Myeloid Leukemia
Alpha-1 Antitrypsin Deficiency Premium Copay Assistance
Temporarily Waitlisting
Phone: 855-567-3721 Fax: 203-349-3192
Related Rare Diseases: Alpha-1 Antitrypsin Deficiency
AT-01 Imaging Study Travel Assistance
Referral Required
Phone: 203-242-0497 Fax: 475-470-8977
Related Rare Diseases: Amyloidosis
AT-05 Study Travel Assistance
Referral Required
Phone: 203-701-7934 Fax: 203-266-1046
Related Rare Diseases: Amyloidosis
Barth Syndrome Emergency Relief
Accepting Applications
Phone: 203-292-0293 Fax: 475-206-0898
Related Rare Diseases: Barth Syndrome
Batten Disease Emergency Relief
Accepting Applications
Phone: 203-405-0585 Fax: 203-349-3836
Related Rare Diseases: Juvenile CLN3 Disease
Resource(s): BattenDisease-ERF
Phone: 203-405-0585 Fax: 203-349-3836
Related Rare Diseases: Juvenile CLN3 Disease
Resource(s): PAP_BattenPrem&Copay
CGD Copay Assistance
Accepting Applications
Phone: 855-201-5096 Fax: 203-486-8462
Related Rare Diseases: Chronic Granulomatous Disease
Resource(s): CGD-PAP, CGD-PAP-Spanish
CGD Emergency Relief Assistance
Accepting Applications
Phone: 855-201-5096 Fax: 203-486-8462
Related Rare Diseases: Chronic Granulomatous Disease
Resource(s): CGD-PAP, CGD-PAP-Spanish
CGD Medical Assistance
Accepting Applications
Phone: 855-201-5096 Fax: 203-486-8462
Related Rare Diseases: Chronic Granulomatous Disease
Resource(s): CGD-PAP, CGD-PAP-Spanish
Phone: 855-864-4018 Fax: 203-517-0978
Related Rare Diseases: Cushing Syndrome
Phone: 855-864-4018 Fax: 203-517-0978
Related Rare Diseases: Cushing Syndrome
Cystinosis Copay Assistance
Accepting Applications
Phone: 855-201-5087 Fax: 203-486-8033
Related Rare Diseases: Cystinosis
Cystinosis Emergency Relief
Accepting Applications
Phone: 855-201-5087 Fax: 203-486-8033
Related Rare Diseases: Cystinosis
Cystinosis Medical Assistance
Accepting Applications
Phone: 855-201-5087 Fax: 203-486-8033
Related Rare Diseases: Cystinosis
Fabry Disease Medical Assistance
Accepting Applications
Phone: 203-433-2455 Fax: 203-643-2020
Related Rare Diseases: Fabry Disease
Phone: 203-433-2455 Fax: 203-643-2020
Related Rare Diseases: Fabry Disease
Resource(s): Fabry_PAP_PremCopay
Gaucher’s Disease Premium Copay Assistance
Temporarily Waitlisting
Phone: 203-296-3486 Fax: 203-349-3189
Related Rare Diseases: Gaucher Disease
Phone: 203-694-0412 Fax: 203-349-3190
Related Rare Diseases: Acromesomelic Dysplasia
Phone: 203-694-0412 Fax: 203-349-3190
Related Rare Diseases: Acromesomelic Dysplasia
Phone: 866-828-8902 Fax: 203-349-8446
Related Rare Diseases: Hypophosphatasia
Phone: 866-828-8902 Fax: 203-349-8446
Related Rare Diseases: Hypophosphatasia
Resource(s): HPP-PAP
Phone: 866-828-8902 Fax: 203-349-8446
Related Rare Diseases: Hypophosphatasia
Resource(s): HPP-PAP
Phone: 203-309-3276 Fax: 475-206-0857
Related Rare Diseases: IgA Nephropathy
Phone: 203-309-3276 Fax: 475-206-0857
Related Rare Diseases: IgA Nephropathy
LEMS Premium Copay Assistance
Accepting Applications
Phone: 203-616-4308 Fax: 203-349-3198
Related Rare Diseases: Lambert-Eaton Myasthenic Syndrome
Resource(s): LEMS-PAP