Childhood Liver Disease Research and Education Network
c/o Joan M. Hines,
Research Administrator
Aurora, CO
7207772598
About Childhood Liver Disease Research and Education Network
The Childhood Liver Disease Research and Education Network (ChiLDREN) is a non-profit, collaborative team of doctors, nurses, research coordinators, medical facilities and patient support organizations, all working together to perform important research in 8 rare cholestatic childhood liver diseases, to educate and train physicians and scientists, and to provide important information about the diseases to parents, patients and the public. The ChiLDREN Network has clinical sites and research labs in the US and Canada, and also includes a research lab in London. These sites are working together to improve the lives of children and families dealing with rare liver diseases. The ChiLDREN Network combines the Biliary Atresia Research Consortium (BARC) and the Cholestatic Liver Disease Consortium (CLiC), as well as new studies on cystic fibrosis liver disease (CFLD). The ChiLDREN Network was developed to support the discovery of new diagnostics, etiologic, and treatment options for children with liver disease, and those who undergo liver transplantation. The Network also supports training for the next generation of investigators in rare, pediatric liver diseases.
Related Rare Diseases:
- Bile Acid Synthesis Disorders
- Deficiencia de Piruvato Carboxilasa
- Deficiencia de TRMU
- Low Gamma-GT Familial Intrahepatic Cholestasis
- Cytochrome C Oxidase Deficiency
- Short Chain Acyl CoA Dehydrogenase Deficiency
- Alpers Disease
- Medium Chain Acyl CoA Dehydrogenase Deficiency
- Alagille Syndrome
- Zellweger Spectrum Disorders
- Neonatal Cholestasis
- Biliary Atresia
- Fibrosis quística
- Deficiencia de MDR3
- Deficiencia de alfa-1 antitripsina
- Deficiencia de acil-CoA deshidrogenasa de cadena muy larga (LCAD)