COPA Syndrome Foundation

The COPA Syndrome Foundation is on a mission to discover how the COPA autoimmune disease damages the lungs, joints and other organs. Today very little is known about the disease. Our goal is to raise public awareness about this disorder and fund research and genetic testing to move forcefully toward improving treatment options and medications. We strive to offer hope, and ultimately a cure, for those suffering with the COPA Syndrome and to support their families who carry this genetic disease. COPA syndrome is an inherited disorder caused by mutations in the coatomer subunit alpha gene, known as COPA. The disorder usually appears early in childhood, and is usually characterized by a combination of severe lung disease and arthritis.