IndoUSRare
13687 Neil Armstrong Ave
Herndon, Virginia, USA
540 239 0465

2026 Member
About IndoUSRare
Our vision is to educate, empower, and advocate for patients with rare diseases in the US, India, and around the world by building collaborative bridges across regions and communities to ensure broader representation in research and development, accelerating the discovery of diagnostics and therapies.
Our mission is to help establish and sustain patient-centric education, awareness, training, research, and engagement programs aligned with the FDA’s patient- focused drug development (PFDD) paradigm.


