Nemaline Myopathy Support Group

The Nemaline Myopathy Support Group’s website is dedicated to sharing information on nemaline myopathy. This is a rare, inherited, neuromuscular disease that is usually apparent at birth (congenital) and characterized by extreme muscle weakness (hypotonia). Established in 1999, the website replaces a newsletter and provides information on the disease and related resources, as well as opportunities to network and share information.