The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
P.O. Box 896
Durant, IA 52747 USA
The Association for Glycogen Storage Disease (AGSD) is an 501(c)(3) international, non-profit organization that acts as a focus for individuals with glycogen storage diseases and their families. Glycogen storage diseases are a group of rare inborn errors of metabolism characterized by deficiencies of certain enzymes involved in the metabolism of glycogen. The association seeks to foster communication between affected individuals for the purpose of mutual support and information sharing. Other goals include increasing public awareness of these disorders and promoting medical research into the various forms of glycogen storage diseases. Funds have been used to award college grants and scholarships to students with these disorders and award research grants to medical professionals working on glycogen storage diseases. The association also fosters publicity in local newspapers to make the public more aware of these diseases and to highlight the need for more research and funding for glycogen storage disease. Educational materials include brochures, newsletters, and a parent handbook.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.