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Association for Glycogen Storage Disease


P.O. Box 896
Durant, IA 52747 USA





Email Address

[email protected]


The Association for Glycogen Storage Disease (AGSD) is an 501(c)(3) international, non-profit organization that acts as a focus for individuals with glycogen storage diseases and their families. Glycogen storage diseases are a group of rare inborn errors of metabolism characterized by deficiencies of certain enzymes involved in the metabolism of glycogen. The association seeks to foster communication between affected individuals for the purpose of mutual support and information sharing. Other goals include increasing public awareness of these disorders and promoting medical research into the various forms of glycogen storage diseases. Funds have been used to award college grants and scholarships to students with these disorders and award research grants to medical professionals working on glycogen storage diseases. The association also fosters publicity in local newspapers to make the public more aware of these diseases and to highlight the need for more research and funding for glycogen storage disease. Educational materials include brochures, newsletters, and a parent handbook.

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