Lesch-Nyhan Disease International Study Group
210 South Green Bay Road
Lake Forest, IL
About Lesch-Nyhan Disease International Study Group
The lesch-nyhan disease international study group is a web site is managed by several individuals with special expertise in lesch-nyhan disease. This site is designed to educate patients, family members, caretakers, physicians and researchers about this disease, including diagnosis and treatment. Lesch-nyhan disease is a rare condition that affects children at a very young age. Children born with this disease are almost always male, and their symptoms may include kidney stones, loss of muscle control, and an irresistible urge to try to hurt themselves.