Norrie Disease Association

The Norrie Disease Association is a voluntary non-profit service organization dedicated to providing support and information to people with Norrie disease and their families. Norrie disease is a rare inherited disorder characterized by blindness in both eyes at birth; some affected children may later develop mild to profound hearing loss and varying degrees of mental retardation. Established in 1994, the Norrie Disease Association compiles and disseminates educational and research information on the disorder; maintains a patient registry; and provides referrals to medical and/or genetic services. The association also provides educational and supportive information through its database, directory, and flyers.