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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Norrie Disease Association


Address

P.O. Box 3244
Munster, MA 46321

Phone

7086204556

Email Address

joinnda@norries.org

Description

The Norrie Disease Association is a voluntary non-profit service organization dedicated to providing support and information to people with Norrie disease and their families. Norrie disease is a rare inherited disorder characterized by blindness in both eyes at birth; some affected children may later develop mild to profound hearing loss and varying degrees of mental retardation. Established in 1994, the Norrie Disease Association compiles and disseminates educational and research information on the disorder; maintains a patient registry; and provides referrals to medical and/or genetic services. The association also provides educational and supportive information through its database, directory, and flyers.

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