To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Project DOCC – Delivery of Chronic Care


18 Dunster Road
Great Neck, NY 11021-4640 USA





800 Number


Email Address

[email protected]


The Project DOCC-Delivery of Chronic Care is an educational program designed to illustrate the impact of chronic illness and or disability on the families of children with special healthcare needs in the hospital, at home, and in the community. Parents of children with chronic illness and disability created Project DOCC; in addition, parents, by virtue of their experience, also coordinate, implement, and teach the program. In 1994, Project DOCC originated at North Shore University Hospital, Manhasset, New York, with a five-hour curriculum consisting of three components for pediatric residents. These components included a grand rounds panel presentation, a home visit, and a parent interview (discussing the affected child's chronic illness history). The project has since been replicated at several medical centers across the United States. Medical centers and parents work together as a team to implement Project DOCC. The project then becomes a mandatory requirement for all pediatric residents during their training. The curriculum is experienced in a designated rotation (e.g., behavioral and developmental pediatrics). In addition to establishing the pediatric residency-training program, Project DOCC has also developed curricula for nurses, social workers, therapists, educators, pastoral caregivers, and general education students.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.