To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Seattle Children’s Hospital


Medical Genetics
Box 5371 4800 Sand Point Way NE
Seattle, WA 98105





800 Number





The Division of Medical Genetics, Children's Hospital and Medical Center, Seattle, Washington, (SCH) is a non-profit medical genetics clinic primarily serving families in the Pacific Northwest. The Clinic also serves families across the U.S. and from other countries in some cases. Families who come to the Medical Genetics Clinic are either self-referred or referred by a physician with concerns about a birth defect or inherited disorder. Several areas are discussed during the clinic visit, including the diagnosis, cause of the disorder, recurrence risk within the family, treatment, and long-term outlook for the condition. Families are also provided with information about available medical and community resources for children with specific conditions. The Medical Genetics Clinic provides genetic counseling; engages in patient advocacy; promotes and supports research; and offers a variety of educational and support information through its database, reports, and brochures.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.