Williams Syndrome Association

The Williams Syndrome Association (WSA) is a national, voluntary, non-profit organization dedicated to improving the lives of individuals with Williams syndrome, a rare congenital disorder characterized by heart and blood vessel abnormalities, developmental delays, characteristic facial features, and/or additional abnormalities. Established in 1983, the association is committed to locating affected individuals and their families, and disseminating current medical and educational information to families, professionals, and the public. In addition, it seeks to increase professional awareness of, and interest in, Williams syndrome and supports ongoing research into the educational, behavioral, social, and medical aspects of the disorder. The Williams Syndrome Association engages in patient and family advocacy; provides appropriate referrals including support groups; and holds annual regional conferences, social gatherings, and biennial conventions.