Other

Discover and access programs and services for rare disease patients and caregivers that do not fall under any of the other categories listed.

Assistance Programs, Children & Family, Education, Mental Health, Nutrition & Wellness, Other
Since 1971, A New Leaf has provided assistance to those most in need in our community, helping families, children, and adults overcome the challenges they... View full description >>
https://www.turnanewleaf.org/
Education, Nutrition & Wellness, Other
Our mission is to help women diagnosed with advanced or metastatic cancer improve their quality of life and outcomes through education, companionship, scientific research, and... View full description >>
https://www.angelmira.org/home
Disability Services & Assistance, Insurance, Other
The Agency for Persons with Disabilities (APD) works with local organizations and private providers to support people who have developmental disabilities and their... View full description >>
https://apd.myflorida.com/
Caregiver Support, Disability Services & Assistance, Education, Legal & Advocacy, Nutrition & Wellness, Other
The Area Agency on Aging of Broward County (AAABC) plans, develops, coordinates, and evaluates programs; funds services; and is the prime advocate for residents of... View full description >>
https://www.adrcbroward.org/
Education, Other
The California Center for Rare Diseases (CCRD) was designed to enhance research and care for the rare disease community. The CCRD is a network of... View full description >>
https://www.rarediseases.ucla.edu/
Assistance Programs, Children & Family, Education, Mental Health, Nutrition & Wellness, Other
We are a non-profit social service organization following the teachings of the Catholic Church. We offer services and programs in the following: Burial Assistance,... View full description >>
https://ccdoc.org/
Disability Services & Assistance, Legal & Advocacy, Other
The Center for Accessible Living (CAL) is an independent living center (ILC) serving the Louisville, Bowling Green, and Murray, Kentucky areas. CAL offers give independent... View full description >>
https://www.calky.org/
Education, Other
Our mission is for low-income single mothers to discover self-sufficient through career training and placement. Developed over the past 36 years, Climb’s comprehensive program isn’t... View full description >>
https://climbready.org/
Other
ClinicalTrials.gov is a website and online database of clinical research studies and information about their results. The purpose of ClinicalTrials.gov is to... View full description >>
https://clinicaltrials.gov/
Assistance Programs, Children & Family, Education, Nutrition & Wellness, Other
Community Service Programs of West Alabama, Inc. (CSP) is a private, nonprofit, community action agency, created by the Economic Opportunity Act of 1964. CSP is... View full description >>
https://www.cspwal.com/menus/home.html
Assistance Programs, Education, Other
The mission of Crossroads Rhode Island is to help homeless or at-risk individuals and families secure stable homes. Those we serve are able to overcome... View full description >>
https://www.crossroadsri.org/
Education, Other
Located in New York City, the DISCOVER Program of New York-Presbyterian/Morgan Stanley Children’s Hospital and Columbia Doctors is available to people from around the world.... View full description >>
https://www.nyp.org/morganstanley/discover-program
Other
We offer specialized care to help maintain or improve the quality of life for someone whose illness, disease, or condition is unlikely to be cured.... View full description >>
https://dchc.douglascounty-ne.gov/hospice-care/
Caregiver Support, Education, Other
First Things First is an essential leader and partner in creating a family-centered, equitable, high-quality early childhood system that supports the development, well-being, health and... View full description >>
https://www.firstthingsfirst.org/
Adaptive Technology, Assistance Programs, Children & Family, Disability Services & Assistance, Education, Other
The Foundation for Blind Children was founded in 1952 by parents of blind children who wanted services for their blind children in Phoenix, instead of... View full description >>
https://seeitourway.org/
Assistance Programs, Children & Family, Education, Legal & Advocacy, Other
As one of Arizona’s pioneer social service agencies, Friendly House was first established in 1920 as part of a local initiative to assist immigrants... View full description >>
https://www.friendlyhouse.org/
Other
GARD is a program of the National Center for Advancing Translational Sciences (NCATS) to provide access to current, reliable, and easy to understand information about... View full description >>
https://rarediseases.info.nih.gov/
Children & Family, Disability Services & Assistance, Education, Nutrition & Wellness, Other, Recreation
HELP Foundation empowers individuals with intellectual and developmental disabilities through residential, day support, vocational, and summer education programs to choose services and opportunities as respected... View full description >>
https://www.helpfoundationinc.org/
Assistance Programs, Education, Mental Health, Nutrition & Wellness, Other
Utilizing a patient-centered, multidisciplinary, medical home approach, Indian Health Care Resource Center, a 501(c)(3) nonprofit organization, offers a full range of health and wellness... View full description >>
https://www.ihcrc.org/
Assistance Programs, Children & Family, Mental Health, Nutrition & Wellness, Other
Jewish Family Services of WNC (JFS) is an inclusive, welcoming space that provides a broad range of clinical and social support services to adults of... View full description >>
https://jfswnc.org/
Assistance Programs, Caregiver Support, Children & Family, Disability Services & Assistance, Insurance, Nutrition & Wellness, Other
Kentuckiana Regional Planning and Development Agency (KIPDA) provides regional planning, review and technical services in the areas of public administration, social services and transportation as... View full description >>
https://www.kipda.org/
Assistance Programs, Caregiver Support, Disability Services & Assistance, Insurance, Nutrition & Wellness, Other
The Bluegrass Area Agency on Aging and Independent Living (BGAAAIL) promotes and provides for the development of community based systems of care which include: planning,... View full description >>
https://bgaaail.com/
Nutrition & Wellness, Other
Maribo Cares  is a 501(c)(3) nonprofit organizations which lovingly supports cancer fighters and survivors, their families and pets by means of providing direct assistance, services,... View full description >>
https://maribocares.org/
Children & Family, Mental Health, Other
Our mission is to empower our families by promoting the sacredness of our children, by reaffirming the shared responsibility of parenting, and by honoring the... View full description >>
https://www.meskwaki.org/child-support-services/
Education, Other
Our mission is to ensure that individuals with genetic disorders and their families have access to quality care and appropriate genetic expertise and information through... View full description >>
https://www.mountainstatesgenetics.org/
Assistance Programs, Other
Nauset Neighbors is an all-volunteer organization providing services that make it possible for our members to stay in their homes and active in their communities... View full description >>
https://nausetneighbors.org/content.aspx?page_id=0&club_id=502670
Education, Other
The New England Regional Genetics Network advances the health and well-being of individuals with or at risk for genetic conditions by improving access to genetic services, educating... View full description >>
https://www.negenetics.org/
Adaptive Technology, Assistance Programs, Children & Family, Disability Services & Assistance, Education, Legal & Advocacy, Other
The Ocean State Center for Independent Living is a non-residential, consumer-driven, community-based, cross-disability, non-profit organization. OSCIL was established in 1988 to provide a range of independent... View full description >>
https://oscil.org/
Adaptive Technology, Assistance Programs, Disability Services & Assistance, Legal & Advocacy, Other
​​​​​​​​​​​​The Office for Children with Special Health Care Needs (OCSHCN) provides comprehensive care to children and youth with special health care needs who: ... View full description >>
https://www.chfs.ky.gov/agencies/ccshcn/Pages/default.aspx
Disability Services & Assistance, Education, Other
The Oklahoma Department of Rehabilitation Services (DRS) expands opportunities for employment, independent life and economic self-sufficiency by helping Oklahomans with disabilities bridge barriers to success... View full description >>
https://oklahoma.gov/okdrs.html
Children & Family, Disability Services & Assistance, Other, Recreation
Our mission is to provide dynamic programs and services to individuals who have intellectual disabilities and their families, so they may achieve their goals and... View full description >>
https://osbi.org/
Other
PAHousingSearch.com is a free resources to help you find a home that fits your needs and budget. Property providers can list available apartments or homes... View full description >>
https://www.pahousingsearch.com/
Assistance Programs, Other
The Pennsylvania Achieving a Better Life Experience (ABLE) Act follows federal legislation that authorizes states to create ABLE programs. Modeled after college savings... View full description >>
https://www.paable.gov/
Education, Legal & Advocacy, Other
The Pennsylvania School Bus Association (PBSA) was founded in 1980 and consists of over 300 school transportation contractors and industry partners who have come together... View full description >>
https://paschoolbus.org/
Legal & Advocacy, Other
Pre-Health Dreamers (PHD) promotes a culture of inclusion in higher education and healthcare by working with institutions to establish equitable holistic support and processes for... View full description >>
https://www.phdreamers.org/
Assistance Programs, Other
The overall goal of Project Austin is to provide continuity of care to children with special healthcare needs as they transition from the hospital to... View full description >>
https://www.childrensomaha.org/hospital-experience/support-services/project-austin/
Assistance Programs, Disability Services & Assistance, Legal & Advocacy, Nutrition & Wellness, Other
The focus of Resilience and Community Services (RCS) is to provide essential services for Louisville residents, especially for low and moderate income populations, including: preventing... View full description >>
https://louisvilleky.gov/government/resilience-and-community-services
Other, Recreation
Rosie’s Love is a 501c3 not-for-profit organization committed to helping the children and families at The Melodies Center for Childhood Cancer and Blood Disorders at... View full description >>
https://www.rosieslove.org/
Children & Family, Mental Health, Other
Established in 1988, Save the Family Foundation of Arizona is a leading provider of housing, case management and supportive services to more than 650 homeless... View full description >>
https://savethefamily.org/
Assistance Programs, Children & Family, Education, Mental Health, Nutrition & Wellness, Other
The Social Development Commission (SDC) has served as a planner, coordinator, and provider of human service programs for low-income individuals and families in Milwaukee County... View full description >>
https://www.cr-sdc.org/
Assistance Programs, Children & Family, Education, Nutrition & Wellness, Other
We work to alleviate poverty, create opportunities, and increase the financial stability for low-income people so that every member of our... View full description >>
https://www.sscac.org/
Adaptive Technology, Disability Services & Assistance, Education, Other
Stand Among Friends is a non-profit organization that helps college students and adults with disabilities prepare for, seek, and understand their strengths when... View full description >>
https://standamongfriends.org/
Education, Other
The Stanford Center for Undiagnosed Diseases (CUD) is one of the 12 clinical sites of the Undiagnosed Diseases Network (UDN) supported by the NIH Common... View full description >>
https://undiagnosed.stanford.edu/
Adaptive Technology, Other
Sun Sounds of Arizona is available to any person in the United States with a print disability via the web at https://www.sunsounds.org, TuneIn Radio, Smart... View full description >>
https://sunsounds.org/
Other
The Tennessee Primary Care ASsociation (TPCA) improves access to primary healthcare through leadership, advocacy, and support as the voice of Community Health Centers. Founded in... View full description >>
https://www.tnpca.org/
Mental Health, Nutrition & Wellness, Other
The American Red Cross Massachusetts Region is part of the largest and most diverse service organization in the United States, serving the 7.029 million residents... View full description >>
https://www.redcross.org/local/massachusetts.html
Children & Family, Education, Other
The Junior League Family Resource Center is a place to get information about your child’s medical condition or disability. We have a family health library,... View full description >>
https://www.childrenshospitalvanderbilt.org/information/family-resource-center
Disability Services & Assistance, Other
The Partnership for Inclusive Disaster Strategies (The Partnership) is the only U.S. disability-led organization with a focused mission of equity for people with disabilities and... View full description >>
https://disasterstrategies.org/
Legal & Advocacy, Nutrition & Wellness, Other
Pink Rocki Advocacy Foundation (PRAF) is a 501(c)(3) non-profit organization whose mission to to equip emerging adults as they prepare to leave home for the... View full description >>
https://www.rockifoundation.org/
Assistance Programs, Children & Family, Other
Our mission is to end family homelessness by restoring hope and rebuilding lives. Founded in 1964, UMOM is located in Phoenix, Arizona and is an... View full description >>
https://umom.org/
Caregiver Support, Children & Family, Education, Nutrition & Wellness, Other, Recreation
Our mission is to improve lives by uniting the caring power of community. United Way of Central Iowa focuses on three counties in Iowa: Polk,... View full description >>
https://www.unitedwaydm.org/
Children & Family, Education, Other
The multidisciplinary Pediatric Rare Disease Center comprises interdisciplinary teams with expertise in neurology, genetics, cardiology, nephrology, endocrinology and more from across Vanderbilt University Medical Center. Our mission... View full description >>
https://www.vumc.org/rarediseases/welcome-vanderbilts-pediatric-rare-disease-center
Children & Family, Mental Health, Other
Wellmore, Inc. is one of the largest behavioral health and substance use providers in western Connecticut, serving 43 towns in northwestern Connecticut. As a... View full description >>
https://www.wellmore.org/
Other
The WHAS Crusade for Children, Inc. established in 1954 by WHAS-TV, raises money for agencies, schools and hospitals to better the lives of special needs... View full description >>
https://www.whascrusade.org/
Education, Legal & Advocacy, Other
WECAN (Women’s Empowerment through Cape Area Networking) was founded in 2001 to empower Cape Cod women by providing unique services that inspire hope and bring... View full description >>
https://www.wecancenter.org/