Written by Christina Jensen on May 30, 2017
Washington, D.C., May 30, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Hereditary Sensory Autonomic Neuropathy Type 1E (HSAN1E). This new resource is available free online to individuals around the… Read More
Written by Christina Jensen on May 18, 2017
The 2017 Rare Impact Awards continues NORD’s 31-year tradition of bringing together the entire rare disease community to celebrate those who are making extraordinary contributions to drive progress and help others.
The Rare Impact Awards ceremony will be held on Thursday, May 18,… Read More
Written by Jennifer Huron on October 14, 2016
Washington, D.C., October 14, 2016—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced it is accepting nominations for the 2017 Rare Impact Awards.
Submissions are now open online at www.rareimpact.org/awards. Submissions will close on Friday, January 13,… Read More