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Archives for: April 20th, 2020

Update on NORD’s Recent Advocacy Work on COVID-19 for the Rare Community

Written by Laura Mullen on April 20, 2020

In this time of crisis and uncertainty, NORD’s policy team has been working to pursue policies at the federal and state levels to address COVID-19 related concerns critical to the rare disease community. 

Protecting Access to Necessary Medical Treatment During the Pandemic

Social distancing is critical for slowing… Read More

NORD’s Paul Melmeyer Authors Piece in NCC Collaborator about State-Based Advocacy

Written by Lisa Sencen on March 16, 2015

NORD’s Assistant Director of Public Policy, Paul Melmeyer, authored this great piece (below) in the March 2015 issue of the NCC Collaborator, the monthly publication from the National Coordinating Center for the Genetic Service Collaboratives (NCC).  NCC focuses on bringing quality genetic and newborn screening services to local communities, and… Read More