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Archives for: June 30th, 2022

NORD’s Living Rare Forum and Rare Impact Awards Highlight Powerful Patient Stories and Community Rock Stars

Written by Rohan Narayanan on June 30, 2022

NORD’s patient centric conference showcased inspiring individuals, expert resources and presentations, and a festive celebration at the Rock and Roll Hall of Fame

Cleveland, OH, June 29, 2022 – This week, the National Organization for Rare Disorders (NORD®) hosted the Living Rare, Living Stronger NORD Patient and Family Forum, NORD’s annual… Read More

Information on current NATPARA® shortage

Written by Valaree DonFrancesco on October 10, 2019

On September 5, 2019, Takeda issued a recall of NATPARA® (parathyroid hormone), due to rubber particulates originating from the rubber septum of the NATPARA cartridge. As of October 9,  NATPARA® is in shortage.

NORD has reached out to the Food and Drug Administration (FDA) on behalf of… Read More