Rare Disease News

Empowering the Rare Disease Community in Drug Development: A New Path Forward

Published November 20, 2024 by NORD

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By Rebecca Aune, NORD Director of Education Programs The rare disease community knows hard truths all too well. Effective treatments are scarce across the thousands of known rare diseases. With …

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Inspiring Innovation:
A Look Back at the 2024 NORD^® Summit

Published November 8, 2024 by NORD

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Summit highlights, announcements, and insights Patients at the Forefront At the 2024 National Organization for Rare Disorders (NORD) Rare Diseases and Orphan Products Breakthrough Summit®, more than 800 attendees – …

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A Look Back at the 2024 NORD^® Summit”

Why Should I Get Genetic Testing If I Already Have a Diagnosis?

Published July 10, 2024 by NORD

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Education

New NORD Resources Address this Question The National Organization for Rare Disorders (NORD) has published new animated videos in English and Spanish about why rare disease patients should get genetic …

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Rare Disease News

Empowering the Rare Disease Community in Drug Development: A New Path Forward

Inspiring Innovation:A Look Back at the 2024 NORD® Summit

Why Should I Get Genetic Testing If I Already Have a Diagnosis?

Inspiring Innovation:
A Look Back at the 2024 NORD^® Summit