Rare Disease News

Impact of the Orphan Drug Tax Credit on Treatments for Rare Diseases

Published June 17, 2015 by NORD

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Today, the National Organization for Rare Disorders (NORD), Biotechnology Industry Organization (BIO), and Ernst & Young released “Impact of the Orphan Drug Tax Credit on Treatments for Rare Diseases,” …

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Global Voice for Rare Disease Patients Launches Today: Rare Diseases International

Published May 28, 2015 by NORD

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Madrid and Washington, D.C.—May 28, 2015—The global voice for rare disease patients launches today. More than 60 patient representatives from 30 countries are gathering in Madrid, …

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NORD Issues Statement on Today’s Approval of the 21st Century Cures Initiative

Published May 21, 2015 by NORD

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NORD President and CEO Peter L. Saltonstall today issued the following statement on the approval by the House Energy and Commerce Committee of the 21st Century Cures legislative initiative and …

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The Will to Live and the Strength for a Cure

Published December 18, 2014 by NORD

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The day Joshua Frase was born, his parents Alison and Paul, were given grave news about…