Published August 21, 2019 by NORD
Washington, DC, August 29, 2019–The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition®, which …
Continue reading “Mark Your Calendars – October 1 is Rare Cancer Day!”
Read morePublished August 7, 2019 by NORD
The collaborative project between the organizations will kick off at a launch meeting in September and will aim to reduce barriers for the development of new treatments and cures …
Continue reading “FUNDED BY FDA, C-PATH and NORD TO LAUNCH RARE DISEASE DATA ANALYTICS PLATFORM”
Read morePublished July 31, 2019 by NORD
Washington, DC, July 31, 2019—The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing the over 25 million Americans with rare diseases, has announced the Patient/Caregiver Opening …
Read morePublished June 18, 2019 by NORD
New program by the trusted voice and leader in the rare disease community aims to increase clinician preparedness and improve the care of patients living with rare diseases BOSTON, …
Continue reading “NORD Launches Digital Education Initiative with PlatformQ Health”
Read morePublished June 3, 2019 by NORD
This collection of real-world insights is informed by scientifically validated, patient-reported data collected by NORD’s registry community.
Read morePublished May 10, 2019 by NORD
Living Rare, Living Stronger will bring the rare community together with physicians, medical students, and allied health professionals for a program of learning, sharing and connecting.
Read morePublished May 7, 2019 by NORD
NORD developed key drug pricing principles with the needs of the rare disease community in mind.
Read morePublished April 30, 2019 by NORD
All U.S. and international researchers are encouraged to apply by the initial application deadline of June 18, 2019 Washington, DC, April 30, 2019 – The National Organization for Rare Disorders® …
Read morePublished April 26, 2019 by NORD
Yesterday, a NORD Member Organization and IAMRARE™ Registry Client, The DHPS Foundation, officially launched their patient registry, DHPS Patient Registry. NORD’s IAMRARE Registry Program was built to address the special needs of …
Continue reading “NORD IAMRARE DHPS Patient Registry Launched”
Read morePublished April 17, 2019 by NORD
This 5th annual issue is the largest to date and focuses on the progress in medical science, genetics, and neuromuscular diseases Parsippany, NJ – April 16, 2019 – Frontline Medical Communications (FMC) …
Continue reading “The 2019 Rare Neurological Disease Special Report Is Now Available”
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