Published November 3, 2016 by NORD
Washington, D.C., November 3, 2016—The Fibrous Dysplasia Foundation and the National Organization for Rare Disorders announce the launch of an ambitious study to research fibrous dysplasia/McCune-Albright syndrome (FD/MAS). The new …
Read morePublished October 26, 2016 by NORD
Washington, D.C., October 26, 2016—As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders has published The NORD Physician Guide to …
Continue reading “NORD Publishes Physician Guide to Cutaneous T-Cell Lymphoma”
Read morePublished October 14, 2016 by NORD
Registration is open for the 2017 Rare Impact Awards.
Read morePublished October 5, 2016 by NORD
Washington, D.C., October 5, 2016 – NORD, the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced the three keynote speakers for its 2016 Rare Diseases …
Continue reading “Rare Diseases & Orphan Products Breakthrough Summit Speakers”
Read morePublished September 30, 2016 by NORD
NORD Now has A Growing Home Page on The Mighty and Will Appear on Many Stories on the Site.
Read morePublished September 23, 2016 by NORD
Unanimous vote extends the Rare Pediatric Disease Priority Review Voucher Program with important policy changes through December Washington, D.C., September 23, 2016 – On Thursday, the Senate reached an important compromise …
Read morePublished September 22, 2016 by NORD
More than 300 organizations join forces to ask Congress to provide robust, sustained, and predictable budget increases for the NIH Washington, D.C., September 22, 2016— The National Organization for Rare …
Read morePublished June 30, 2016 by NORD
The Commissioner of the U.S. Food and Drug Administration, Robert Califf, M.D., will speak at NORD’s annual Rare Diseases & Orphan Products Breakthrough Summit in October. Commissioner Califf will provide …
Continue reading “FDA Commissioner Dr. Robert Califf to Speak at NORD Summit in October”
Read morePublished June 28, 2016 by NORD
As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders (NORD) has published a Physician Guide to Mitochondrial Myopathies, available free …
Continue reading “NORD Publishes Physician Guide to Mitochondrial Myopathies”
Read morePublished June 16, 2016 by NORD
NORD, the leading, independent advocacy organization committed to helping the 1 in 10 Americans with rare diseases, applauds the Senate for authorizing medical foods coverage in the National Defense Authorization …
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