Rare Disease News

Season Finale: The FDA’s Dr. Kathleen Donohue and RDCA- DAP

Published June 22, 2022 by NORD

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NORDPod

Today on NORDpod, Andrew MacDowell stands in for Matthew Zachary, and he welcomes Dr. Kathleen Donohue, Director of the Division of Rare Diseases and Medical Genetics, at the FDA’s Office …

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Living With Trichotillomania: Pageant Queen Sarah Pennington

Published June 8, 2022 by NORD

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NORDPod

You’re in for a treat on today’s episode of NORDpod as I welcome chronic illness advocate Sarah Pennington to the show. Since the age of 11, Sarah has been managing …

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Paying It Forward: Young Adult Brain Cancer Survivor Rob Long

Published May 25, 2022 by NORD

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NORDPod

Rob Long is the Executive Director at Uplifting Athletes, a nonprofit organization that inspires the rare disease community with hope through the power of sport. In 1020, as a Pre-Season …

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The Incredibly Talented Mr Bobby Foster

Published May 11, 2022 by NORD

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NORDPod

Bobby Foster is a content creator, a rapper/producer, a spoken word poet, and a certified life coach who was diagnosed with cystic fibrosis at birth. He graduated with a degree in …

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Welcome to NORDpod (Teaser)

Published April 30, 2020 by NORD

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NORDPod

Welcome to NORDpod™, the voice of rare disease and the official podcast of The National Organization of Rare Disorders (NORD®), a 501(c)(3) patient advocacy organization dedicated to individuals with rare …

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