Children’s Tumor Foundation

The Children’s Tumor Foundation is the drug discovery engine for NF. By bringing together patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver faster results for millions affected by neurofibromatosis or schwannomatosis. Our patient-first collaborative approach accelerates drug development and brings life-changing therapies to patients faster – driven by our mission to end NF. NF refers to a group of genetic conditions that collectively affect 1 in every 2,000 births. NF includes neurofibromatosis type 1 (NF1) and all forms of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2. These conditions cause tumors to grow on nerves throughout the body and can lead to deafness, blindness, disfigurement, bone abnormalities, learning disabilities, disabling pain, and cancer.