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“22q and You” Center
Email: [email protected]
Related Rare Diseases: Síndrome de deleción del cromosoma 22q11.2
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11q Research and Resource Group
Phone: 404-428-8440 Email: [email protected]
Related Rare Diseases: Deficiencia de semialdehído succínico deshidrogenasa, Síndrome de Jacobsen (monosomía parcial 11q)
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17q12 Foundation
Email: [email protected]
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1p36 Deletion Support & Awareness
Email: [email protected]
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22q Family Foundation
Email: [email protected]
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3q29 Foundation
Email: [email protected]
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4P- Support Group, Inc.
Email: [email protected]
Related Rare Diseases: Síndrome de Wolf-Hirschhorn
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5P-Society
Phone: 562-804-4506 Email: [email protected]
Related Rare Diseases: Síndrome de Cri du Chat
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A Breath of Hope Foundation For NMO
Email: [email protected]
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A Cure in Sight
Email: [email protected]
Related Rare Diseases: Melanoma ocular
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A family who battled with ALD and AMN
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A Twist of Fate-ATS
Email: [email protected]
Related Rare Diseases: Síndrome de tortuosidad arterial
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A-T Children’s Project
Phone: 954-481-6611
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A. J. Pappanikou Center for Excellence in Developmental Disabilities
Phone: 860-679-1500 Email: [email protected]
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AADC Family Network
Email: [email protected]
Related Rare Diseases: Deficiencia de L-aminoácido aromático decarboxilasa
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Aarda
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Aarskog Syndrome Parents Support Group
Phone: 215-943-7131 Email: [email protected]
Related Rare Diseases: Síndrome de Aarskog
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Abdominal Cancers Alliance, a program of Partners for Cancer Care and Prevention
Phone: 410-216-4449 Email: [email protected]
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Abetalipoproteinemia and Related Disorders Foundation
Email: [email protected]
Related Rare Diseases: Abetalipoproteinemia, chylomicron retention disease, familial hypobetalipoproteinemia 1 ...
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About Madelungs
Phone: 925-516-6744 Email: [email protected]
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