Join NORD’s Rare Action Network for an advocacy day in Albany on Tuesday, February 25, 2025 to advocate for a permanent New York State Rare Disease Advisory Council and to thank NY lawmakers for the recent passage of the Rare Disease Day resolution, which proclaims February 28, 2025 as Rare Disease Day in the State of New York. Travel and lodging scholarships are available on a limited basis and you must registered by 1/30/2025 to be considered for a scholarship.