NORD is hosting community listening sessions with Latino/a/x rare disease patients, families, and caregivers in southern California. We want to hear your experience getting diagnosed and living with a rare disease! During the sessions, facilitators will ask participants a few questions related to the rare disease experience. All identifying information shared during the sessions will remain confidential. Learnings from the sessions will help NORD better understand experiences of Latino rare disease community members with barriers to care, diagnosis, and therapies.
Date: Wednesday, November 6
Time: 4:30pm to 7pm PT
Location: Los Angeles Central Library, 630 W. 5th St.
Local travel assistance (such as parking reimbursement and cab fare) is available, and individuals that participate in a listening session will receive a gift card. There will be games and activities for kids, and dinner will be served. We hope you will join us!
These listening sessions are private events and open only to Latino/a/x rare disease patients and caregivers, registration is required. Click here to register.
